Notice bibliographique
- Notice
Type(s) de contenu et mode(s) de consultation : Texte noté : sans médiation
Auteur(s) : Kittay, Eva Feder (1946-....)
Titre(s) : Learning from my daughter [Texte imprimé] : the value and care of disabled minds / Eva Feder Kittay
Publication : New York (N.Y.) : Oxford University press, copyright 2019
Description matérielle : 1 volume (xxiii-276 pages) ; 25 cm
Note(s) : Bibliogr. p. 253-266. Notes bibliogr. Index
What gives our life meaning? What is a good life? How should we treat each other?
Disability offers a powerful challenge to long-held philosophical views about the
nature of the good life, what provides meaning in our lives, and the centrality of
reason, as well as to questions of justice, dignity, and personhood. In Learning from
My Daughter, Eva Feder Kittay grapples with just how we need to revisit core philosophical
ideas in light of disabled people's experiences and ways of being in the world. An
award-winning philosopher who is also the mother to a multiply disabled daughter,
Kittay interweaves the personal voice with the philosophical as a critical method
of philosophical investigation. She addresses why cognitive disability can reorient
us to what truly matters, and what truly matters, and questions the centrality of
normalcy as part of a good life. With sensitivity and insight, Kittay examines other
difficulty topics: How can we look at the ethical questions regarding prenatal testing
in light of a new appreciation of the personhood of disabled people? What do new possibilities
in genetic testing imply for understanding disability, the family, and bioethics?
How can we reconsider the importance of care? In the process of pursuing these questions,
Kittay articulates an ethic of care, claiming that it is the ethical theory most useful
for asserting full rights for disabled people to live joyful and fulfilling lives,
as well as for understanding how to treat each other with care and respect given our
interdependence. Learning from My Daughter both imparts lessons that advocate on behalf
of those with significant disabilities, and constructs a moral theory grounded on
our ability to give, receive, and share care and love. Above all, it aims to adjust
social attitudes and misconceptions about life with disability.
Sujet(s) : Handicapés mentaux -- Soins -- États-Unis
Handicapés mentaux -- États-Unis
Morale sociale -- États-Unis
Morale pratique -- États-Unis
Diagnostic prénatal -- États-Unis
Indice(s) Dewey : 362.401 (23e éd.) = Personnes handicapées physiques (problèmes et services sociaux) - Philosophie et théorie
Identifiants, prix et caractéristiques : ISBN 9780190844608. - ISBN 0190844604 (rel.)
Identifiant de la notice : ark:/12148/cb47556756b
Notice n° :
FRBNF47556756
(notice reprise d'un réservoir extérieur)
Table des matières : Foreword / / Susan J. Brison ; ; Part I. Learning to become a humbler philosopher -- ; Overview: The journey and its ends -- ; 1.. On what matters/not. ; The story - The beginning ; ; The story meets the argument: The lived life matters ; ; The argument -- ; 2.. The new normal and a good life. ; Desiring the normal ; ; Examining the desire for a "normal child" ; ; The paradox of normalcy ; ; Toward more capacious norms ; ; Normalcy and the good life -- ; A meditation on normalcy inspired by Camus's The Rebel -- ; Part II Choosing children and the limits of planning --. Overview: Choice and selection -- ; 3.. The limits of choice. ; Planning a trip to Italy... ; ; Landing in Holland ; ; Choosing children ; ; The problem with choice ; ; So what does "choice" mean? -- ; 4.. The ethics of prenatal testing and selection. ; The question ; ; First encounters with the prenatal testing debates ; ; "Something would be lost" - The extinction objection ; ; "All children are burdens" ; ; With reproductive selection, "Families become like exclusive clubs" ; ; Making the world a more welcoming place for people with disabilities -- ; 5.. How not to argue for selective reproductive procedures. ; The nonperson-affecting harm principle ; ; The structure of Brock's argument ; ; How not to argue: Hypotheticals, idealizations, and thought experiments ; ; Conclusion -- ; Addendum:. Mother's choice -- ; Part III. Care in philosophy, disability, and ethics -- ; Overview: The lessons of care -- ; 6.. Dependency and disability. ; Introduction: Dependency - avoidable or inevitable? ; ; The registers of dependency ; ; The construction of independence ; ; The cares of dependency ; ; Independence and the personal attendant -- ; 7.. An ethics of care. ; Is care an important concept for philosophy? ; ; Features of an ethics of care ; ; Temptations and critiques of an ethic of care -- ; 8.. The completion of care - The normativity of care. ; Starting with the completion of care ; ; The taking-up of care - The logic of care ; ; The requirements of subjectivity ; ; Care, paternalistic or respectful ; ; Moral luck ; ; A moral obligation to receive care? -- ; 9.. Forever small: The strange case of Ashley X. ; The case and the parents' justification ; ; A tale of two girls and one mother's journey ; ; A care ethics framework ; ; The Ashley treatment's questionable presumptions ; ; The social model and care's completion ; ; Peter Singer weights in -- ; Afterword:. My daughter's body - A meditation on soul.
