Notice bibliographique
- Notice
Type(s) de contenu et mode(s) de consultation : Texte noté : sans médiation
Auteur(s) : Piepmeier, Alison (1972-2016)
Estreich, George
Adams, Rachel
Titre(s) : Unexpected [Texte imprimé] : parenting, prenatal testing, and Down syndrome / Alison Piepmeier, with George Estreich and Rachel Adams
Publication : New York (N.Y.) : New York University Press, copyright 2021
Description matérielle : 1 vol. (xxiv-171 p.) : 1 portr. ; 23 cm
Note(s) : Notes bibliogr. Index
"What prenatal tests and down syndrome reveal about our reproductive choices. When
Alison Piepmeier—scholar of feminism and disability studies, and mother of Maybelle,
an eight-year-old girl with Down syndrome—died of cancer in August 2016, she left
behind an important unfinished manuscript about motherhood, prenatal testing, and
disability. In Unexpected, George Estreich and Rachel Adams pick up where she left
off, honoring the important research of their friend and colleague, as well as adding
new perspectives to her work. Based on interviews with parents of children with Down
syndrome, as well as women who terminated their pregnancies because their fetus was
identified as having the condition, Unexpected paints an intimate, nuanced picture
of reproductive choice in today's world. Piepmeier takes us inside her own daughter's
life, showing how Down syndrome is misunderstood, stigmatized, and condemned, particularly
in the context of prenatal testing. At a time when medical technology is rapidly advancing,
Unexpected provides a much-needed perspective on our complex, and frequently troubling,
understanding of Down syndrome."--Publisher description ; ""Unexpected" explores parenting,
prenatal testing, and Down Syndrome"
Sujet(s) : Handicap -- Sociologie
Maternité -- Psychologie
Parents d'enfants handicapés -- Psychologie
Trisomiques 21
Diagnostic prénatal
Indice(s) Dewey :
305.908 (23e éd.) = Personnes handicapées et malades, personnes surdouées
Identifiants, prix et caractéristiques : ISBN 978-1-4798-7995-3 (br.)
Identifiant de la notice : ark:/12148/cb468748578
Notice n° :
FRBNF46874857
(notice reprise d'un réservoir extérieur)
Table des matières : "I Wouldn't Change You If I Could": Disability as a Form of Human Diversity ; The
Inadequacy of "Choice": Disability, Feminism, and Reproduction ; The Welcome Table
; Saints, Sages, and Victims: Down Syndrome and Parental Narrative ; Accessible Words:
Alison Piepmeierand the Boundaries of Disability / George Estreich ; Six Questions
on the Special, the Inclusive, and the Universal / Rachel Adams.
