Notice bibliographique
- Notice
Type(s) de contenu et mode(s) de consultation : Texte noté : sans médiation
Titre(s) : The public shaping of medical research [Texte imprimé] : patient associations, health movements and biomedicine / edited by Peter Wehling, Willy Viehöver and Sophia Koenen
Publication : London : Routledge, 2015
Description matérielle : 1 vol. (XVIII-290 p.) : ill. ; 24 cm.
Collection : Routledge studies in the sociology of health and illness
Lien à la collection : Routledge studies in the sociology of health and illness
Comprend : A seat at the table, "a lab of our own" and working with what we know now : how the
U.S. environmental breast cancer movement shapes research / Lori Baralt ; Initiating
and funding medical research on a rare disease : the approach of the German Cystic
Fibrosis Association / Andreas Reimann ; Eurordis : empowering patients living with
rare diseases to participate in biomedical knowledge production / Christel Nourissier,
Monica Ensini and Maria Mavris ; The entanglement of scientific and political claims
: towards a new form of patients' activism / Madeleine Akrich, Orla O'Donovan and
Vololona Rabeharisoa ; Obesity, the alternative food movement, and complete streets
: new forms of "patient" activism and the evolution of health social movements / Mercedes
C. Lyson and Stephen Zavestoski ; Autism, the Internet and medicalization / Peter
Conrad and Catherine Tan ; A community fractured : Canada's breast cancer movement,
pharmaceutical company funding, and science-related advocacy / Sharon Batt ; Beyond
scientific controversies : scientific counterpublics, countervailing industries, and
undone science / David J. Hess ; Interpellating patients as future users of biomedical
technologies : the case of patient associations and stem cell research / Henriette
Langstrup ; Patient organizations as biosocial communities? : conceptual clarifications
and critical remarks / Thomas Lemke ; Changing contexts for science and society interaction
: from deficit to dialogue, from dialogue to participation- and beyond? / Massimiano
Bucchi ; The virtues (and some perils) of activist participation : the political
and epistemic legitimacy of patient activism / Peter Wehling and Willy Viehöver
; The ethical legitimacy of patient organizations' involvement in politics and knowledge
production : epistemic justice as a conceptual basis / Silke Schicktanz ; Conclusion
: effects of and challenges to the public shaping of medical research / Willy Viehöver,
Peter Wehling and Matthias Roche.
Note(s) : Includes bibliographical references and index
Autre(s) auteur(s) : Wehling, Peter (1954-....). Éditeur scientifique
Viehöver, Willy. Éditeur scientifique
Koenen, Sophia. Éditeur scientifique
Sujet(s) : Médecine -- Recherche
Opinion publique
Indice(s) Dewey :
610.724 (23e éd.) = Médecine et santé - Recherche expérimentale
Identifiants, prix et caractéristiques : ISBN 9780415858236 (rel.). - ISBN 9781315741871 (ebook)
Identifiant de la notice : ark:/12148/cb444134431
Notice n° :
FRBNF44413443
(notice reprise d'un réservoir extérieur)